Announcements

  • PFCC.Connect Informal Conversation: Part 1: PFAC Diversity, Equity, and Inclusion: Recruitment Strat

    Our next PFCC.Connect Informal Conversation: Part 1: PFAC Diversity, Equity, and Inclusion: Recruitment Strategies, will be held on February 28th at 12pm ET

    Join us on to discuss best practices for recruiting patient and family advisors (PFAs), with a focus on addressing gaps in patient and family advisory council (PFAC) diversity and representativeness.

    PFACs are an invaluable mechanism for engaging patients and families to improve health and health care. However, many health care organizations are at risk of not obtaining input and perspectives from key segments of their patient and family population, particularly historically underrepresented populations most likely to experience health inequities (e.g., communities of color, non-English speakers, communities with low socio-economic status, individuals with disabilities, LGBTQ+ populations).

    This PFCC.Connect informal conversation will provide an opportunity to share learnings, questions, and ideas about recruiting, preparing, and supporting PFAs.

    PFCC.Connect conversations are participatory in nature, building on the interest, experience, and 
    expertise of those who join the discussion. We do not do a formal presentation but rather let the conversation be guided by what participants want to learn through sharing our collective experiences. Pam DardessVice President for Strategic Operations, and Marie AbrahamVice President, Programming and Publications will facilitate the discussion.

    Register for the discussion here.

    If you are unable to attend live but are interested in hearing the recording, please register for the webinar and you will receive an email with a link to the recording. 

  • Donate Now to IPFCC

    Support IPFCC

    Our work and leadership have helped bring about significant change in advancing the practice of patient- and family-centered care and building meaningful and productive partnerships among patients, families, and health care professionals.

    There is still much work to be done and you can support IPFCC to continue our efforts.

    Your donation may help IPFCC:

    • Develop a new educational guidance resource
    • Expand and enhance our website content and outreach materials
    • Support our online learning community, PFCC.Connect
    • Provide a scholarship for a patient and family leader to attend one of our educational events
    • Convene an in-depth seminar in your region 
  • Support IPFCC

    Support IPFCC

    Our work and leadership has helped bring about significant change in advancing the practice of patient- and family-centered care and building meaningful and productive partnerships among patients, families, and health care professionals.

    There is still much work to be done and you can support IPFCC to continue our efforts.

    Your donation may help IPFCC:

    • Develop a new educational guidance resource
    • Expand and enhance our website content and outreach materials
    • Support our online learning community, PFCC.Connect
    • Provide a scholarship for a patient and family leader to attend one of our webinars or international conferences
    • Convene an in-depth seminar in your region

    Make A Donation

    You can make a donation by check, payable to: Institute for Patient- and Family-Centered Care. Mail to:

    Institute for Patient- and Family-Centered Care
    PO BOX 6397
    McLean, VA 22106-9998

    The Institute for Family-Centered Care, Inc., is a 501(c)(3) corporation, and does business under the name of Institute for Patient- and Family-Centered Care.

    All donations are tax-deductible.

    Pinwheel Sponsor Program

    The Pinwheel Sponsorship Program is an opportunity for health care organizations to support the work of IPFCC and at the same time be recognized for their commitment. Join with other leading organizations to advance the practice of patient- and family-centered care. Please click here for more information.

    For further information, please contact Sherry Hajec at shajec@ipfcc.org.

  • An Incredible IPFCC 30th Anniversary Celebration!

    On November 15, 2022, IPFCC celebrated our 30th Anniversary with a special virtual event: Transforming Health Care Through Partnerships: A Vision for the Future of PFCC. We highlighted achievements in the field by honoring the 2022 IPFCC Partnership Award recipients and explored the future of patient- and family-centered care with an inspiring panel. 

    Thank you all — Pinwheel and PFCC.Connect Sponsors, Partnership Award winners, panelists, and attendees — for participating in and supporting IPFCC as we reach this important milestone! 

    • For those who missed the live event, a recording of the Celebration is available here.
  • Announcing the Panelists for IPFCC's 30th Anniversary Celebration!

    Don’t miss IPFCC’s 30th Anniversary Celebration, Transforming Health Care Through PartnershipsA Vision for the Future of PFCC!

     

    The exciting program will include the winners of the IPFCC Partnership Award and a panel of experts, moderated by IPFCC Board member Liz Crocker. They will share insights about the impact of PFCC and reflect on its future. Join them in this important discussion!

    Panelists:

    • Cherie Craft MEd, CEO, Founding Executive Director at Smart from the Start 
    • Carol Fancott, PT, PhD, Director of Patient Engagement and Partnerships at Healthcare Excellence Canada
    • Julie Ginn Moretz, Chief Experience Officer/Assistant Vice President, Patient- and Family-Centered Care at Augusta University Health
    • Jeffrey Schlaudecker MD, Geriatric Medicine Specialist at University of Cincinnati
  • IPFCC Celebrates 30 Years!

    For 30 years, the Institute for Patient- and Family-Centered Care (IPFCC) has successfully advanced the practice of patient- and family-centered care, ensuring that partnerships are at the heart of our health system. 


    IPFCC’s 30th Anniversary Celebration, Transforming Health Care Through Partnerships: A Vision for the Future of PFCC, will highlight achievements in the field and explore the future of patient- and family-centered care.

    IPFCC will announce the recipients of the 2022 IPFCC Partnership Award. Liz Crocker, IPFCC Board member, will moderate a panel of experts, representing a variety of roles and settings of care. They will share insights about the impact of PFCC and reflect on its future.

    Register today and join us on November 15th from 12 - 1:30 pm ET! 

  • PFCC.Connect - Follow Up and Thank You!

    Thank you to everyone who participated in the September 29th PFCC.Connect Informal Conversation, "Planning and Facilitating Effective Meetings: Creating Inclusive, Trustworthy Spaces." 

    The recording, slides, and chat files can found here.
  • PFCC.Connect: Planning and Facilitating Effective Meetings: Creating Inclusive, Trustworthy Spaces

    Join us for the next PFCC.Connect Informal Conversation: Planning and Facilitating Effective Meetings: Creating Inclusive, Trustworthy Spaces, which will be held on September 29th at 12pm ET

    Planning and facilitating meetings that create inclusive, trustworthy spaces – whether virtual or in-person – is an important part of developing an inclusive organizational culture. Join us to discuss how to foster effective meetings where everyone has a voice, feels empowered, and has a sense of belonging.

    These informal conversations are participatory in nature, building on the interest, experience, and expertise of those who join the discussion. We do not do a formal presentation but rather let the conversation be guided by what participants want to learn through sharing our collective experiences. Pam Dardess, Vice President for Strategic Operations, and Ushma Patel, Director for Special Projects & Educational Programs will facilitate the discussion.


    Register for the discussion here.


    If you are unable to attend live but are interested in hearing the recording, please register for the webinar and you will receive an email with a link to the recording. 


    The recording and any resources will also be posted in PFCC.Connect for all members to watch and/or refer back to. If you have further questions, please email Ushma Patel at upatel@ipfcc.org. We look forward to your participation.

  • PFCC.Connect Informal Conversation: Awards for Excellence in PFCC Leadership and Practice


    Join us for the next PFCC.Connect Informal Conversation: Awards for Excellence in PFCC Leadership and Practice, which will be held on July 21st at noon EDT

    Extraordinary commitment to PFCC and its core concepts needs to be acknowledged and celebrated. Therefore, a number of hospitals/health systems and other organizations, including IPFCC itself, have created awards to recognize excellence in PFCC leadership and practice. Join us on July 21st from 12 – 1 pm ET to hear about existing awards programs, learn how they were developed, and share information about your organization’s PFCC awards program. 

     

    These informal conversations are participatory in nature, building on the interest, experience, and expertise of those who join the discussion. We do not do a formal presentation but rather let the conversation be guided by what participants want to learn through sharing our collective experiences. Bev Johnson, President and CEO, Deborah Dokken, Coordinator for Patient and Family Partnerships, and Ushma Patel, Director for Special Projects & Educational Programs will facilitate the discussion.


    Register for the discussion here.

    If you are unable to attend live but are interested in hearing the recording, please register for the webinar and you will receive an email with a link to the recording. 


    The recording and any resources will also be posted in PFCC.Connect for all members to watch and/or refer back to. If you have further questions, please email Ushma Patel at upatel@ipfcc.org. We look forward to your participation.

  • New Learning Collaborative from OpenNotes: Proxy Access for Older Adults

    Register to Attend First Meeting of OpenNotes'  Proxy Access Learning Collaborative!
    The first quarterly meeting of a new learning collaborative on portal proxy access for older adults will take place on Monday, July 18, 1-2pm EST. The collaborative welcomes anyone interested in working together to improve access to healthcare information for care partners of older adults. Register here

    If you have any questions about the meeting or the collaborative please contact Deb Wachenheim at dwachenh@bidmc.harvard.edu.
  • PFCC.Connect Informal Conversation - Follow Up

    Thank you to everyone who participated in the May 26th PFCC.Connect Informal Conversation, "Improving Organizational Websites to Support Partnerships with Patients and Families." 
    The recording of the conversation is now available for viewing hereYou can also download the Powerpoint presentation and view a copy of the chat log.
    The files can also be found here.
  • Upcoming PFCC.Connect Conversation: Improving Organizational Websites

    PFCC.Connect Informal Conversation: Improving Organizational Websites to Support Partnerships with Patients and Families

    May 26, 2022

    12 pm ET

    Websites are the public “faces” of hospitals and health systems but often they do not communicate messages that are patient- and family-centered nor are they “user-friendly.”

     

    Please join us for this Informal Conversation to share ideas about (1) re-designing websites that communicate the messages you want, (2) involving patients and families in that process, and (3) collaborating effectively with your organization’s Marketing/Communications Department.

    These informal conversations are participatory in nature, building on the interest, experience, and expertise of those who join the discussion We do not do a formal presentation but rather let the conversation be guided by what participants want to learn through sharing our collective experiences. Bev Johnson, President and CEO, Deborah Dokken, Coordinator for Patient and Family Partnerships, and Ushma Patel, Director for Special Projects & Educational Programs will facilitate the discussion.