Announcements

  • Call for Nominations: CMS Technical Expert Panels - Patient Family Opportunity

    Notice from CMS:
    "The Centers for Medicare & Medicaid Services (CMS) is developing quality measures for certain Medicare beneficiaries. As part of this project, Yale New Haven Health Services Corporation - Center for Outcomes Research and Evaluation (CORE) is currently convening two Technical Expert Panels (TEPs).

    We invite you to nominate individuals who might be interested in participating. The goal is to have broad representation on each panel to encompass the perspectives of healthcare providers, quality improvement professionals, performance measurement experts, purchasers, consumers, and patients. Please see below for an overview of the TEPs accepting nominations. You can nominate others or yourself.

    TEP Objective Beneficiary Population Panel Duration Deadline for Nominations
    Development of Days at Home Quality Measure Patients who are aged 18 years or older* with complex, chronic conditions Through September 2020 January 9, 2020
    5:00 pm ET
    Development of a Quality Measure Assessing Delay in Progression of Chronic Kidney Disease (CKD) Patients who are aged 18 years or older with CKD stages 4 and 5 Through September 2020 and potentially 2021 January 13, 2020
    5:00 pm ET

    Individuals and organizations should be aware that persons selected for the TEP represent themselves and not their organizations. Instructions for submitting a nomination packet, as well as work and TEP member responsibilities can be found on the link below".
  • New York Times Request re: Hospital Provided Childcare for Families

    IPFCC was contacted by Jancee Dunn, a reporter writing an article for the NY Times. She is working on an article regarding childcare support provided by hospitals to parents admitted with sudden illness or in emergencies.
    She is interested in talking with hospitals who provide this service or parents who have had this experience. Her article deadline is by December 30th.

    If you information on this topic, please contact her directly at janceedunn@gmail.com

    Thank you!
  • Free Webinar for Patients and Caregivers Opportunity

    Patients and Caregivers: Learn how you can transform care in your community

  • Abstract Submission Deadline has been extended to December 11th!

    We have extended the submission deadline for abstract to our 9th International Conference in Nashville! Don't miss out!
  • Submit an Abstract for the IPFCC 9th International Conference

    It’s now official:IPFCC's  9th International Conference on Patient- and Family-Centered Care: Partnerships for Quality, Safety, and Equity in Nashville, TN is happening. With leadership support from Vanderbilt University Medical Center and partnership support from Beaumont Health, the conference will be held from August 18 to 20th, 2020.

    Our conferences are such exciting events and we look forward to seeing you there! 

    Given your passion for PFCC and authentic partnerships between health care organizations and patient and family advisors, please consider submitting an abstract about your work at https://ipfcc.org/call-for-abstractsIPFCC is accepting submissions for both oral and poster presentations now.  December 4, 2019 is the abstract closing date.
    I have attached the Call for Abstracts brochure; you can also find more information on our website: https://www.ipfcc.org/events/conference.html. Please feel free to share this information with your
    colleagues.

  • PFAs - Another opportunity to provide virtual feedback...on electronic health records...

    You Do Not Need to Be an EPIC User to Participate (a type of electronic medical record) 

    An Opportunity to Shape the Future of Healthcare!

    Epic’s Patient Experience team builds software that millions of patients use to manage their health. Their team is always striving to make the software better and would love to hear from you!

     

    If you would like to be contacted about potential research studies or opportunities to give feedback on new features, please fill out this 5-10 minute online survey. Studies may be done remotely or on Epic’s campus in Madison, WI. If you’re able to come to Epic, they will provide you with a lunch and a tour of their campus!

     

    For questions, please email PatientUserTesting@epic.com.

     

  • Patient Family Advisor (PFA) Summit on Healthcare Measurement January 28, 2020 National Quality Foru

    PFA Scholarships are available!

    The PFA Summit on Healthcare Measurement will facilitate actionable dialogue between researchers, measure developers, policy organizations, clinical experts, patients and family caregivers. This co-design opportunity will focus on strengthening approaches to engage the patient and family perspective in developing and using healthcare measures. Bridging technical wisdom and lived experiences will ensure that we move toward measures that are more meaningful. You can expect to learn from progressive work being done currently, and to collaborate with experts around problem-solving existing barriers to engagement. Patient family advisors participate by application and national partners by invitation in the coming weeks.

    Meeting Objectives

    1. To increase the capacity of Patient Family Advisors to participate in all stages of measurement development.
    2. To increase the capacity of measurement professionals to meaningfully produce and report quality data to PFAnetwork Members as representatives of the broader consumer voice.
    3. To identify future opportunities for partnership to strengthen the all phases of measure development.
  • Seeking information about use of health information technology impacting patients and families

    Important changes will be happening in the field of health information technology in the near future that will have a direct impact on patients and families.

     

    IPFCC is interested to know if your hospital or health system has:

    • A PFAC (or PFAC subcommittee) focused on HIT (Health Information Technology)?
    • PFA Members on the HIT Committee?
    • A FHIR (Fast Healthcare Interoperability Resource) Implementation Committee or a PFAC focused on FHIR Implementation?
    • (FHIR is the software platform that will be used to solve the interoperability between electronic health records and create an application programming interface (API) between different electronic health records. APIs will also be used to create disease specific apps for patients and families.)
    • PFAs on the OpenNotes Implementation Team?
    • If there is no HIT PFAC or subcommittee, has the existing PFAC has done focused work on HIT issues in partnership with the health system?

    ……………………………..

  • IPFCC is Hiring a Database Manager

    Please share this unique opportunity with your network. IPFCC is looking for someone to join our team!
  • Ontario Health Team (Canada) Seeking Patient, Family, Community Participation in Healthcare Redesign

    Do you live within the  Markham, Stouffville, Brock, Uxbridge and Thornhill regions of Ontario, Canada? Please consider participating in imaging how to improve healthcare services where you live. Share your experience and ideas. View the flyer in the library and RSVP by August 9th by contacting Sharon Kenny at skenny@msh.on.ca or (905) 472-7373 ext. 7091.
  • August Informal Conversation + Updates

    Most of our previous informal conversation recordings have been posted in the All Members Library under "Previous Conversation Recordings." I have also added a shortcut on the homepage, for your convenience.

    For those who registered to receive the recordings by email, I apologize for the delay. I will try and send all of those out to you by the end of this month/beginning of next month.

    Registration is now open for our August conversation on Measurement - Tracking Patient and Family Engagement Activity and Outcomes. You can register for it here. It is also posted on the Events calendar.
  • Upcoming PFCC.Connect Conversations - Watch for Registration Links in your email.

    Mark your calendars now for 2 upcoming PFCC.Connect Informal Conversations:

    • July 18 1pmET/10amPT  Topic: Behavioral Health - Engaging Patients and Families
    There is a growing interest in addressing mental health, substance use disorder and other behavioral health challenges across the continuum. Innovative partnership models are being explored and are showing some promising results. There is a growing recognition that inviting, supporting, and encouraging participation of those with a lived experience is an important aspect of these efforts. How have you engaged individuals and their families in these efforts? What creative solutions are being explored in your organization, community or region? When have patients and families added a unique perspective and helped build coalitions and solutions? How have direct care strategies helped strengthen engagement of those receiving care? Come join a conversation that will explore these issues and uncover the best practices that you and your colleagues/partners have discovered. 
    • August 1 2pmET/11amPT  Topic:  Measurement: Tracking Patient and Family Engagement Activities and Outcomes
    Many organizations have engaged patients and families in direct care and as improvement partners. To build an evidence base for these partnerships and the advancement of PFCC, developing a measurement strategy is essential. What has your organization found to be most useful? How has your PFAC and PFAs contributed or been involved in measuring change and improvement? Do you use Annual Reports to document results? When and where are results shared and with whom? Are there topics or areas that you have found challenging to measure? What advice might you give an organization just starting out in this journey about the significance and impact of documenting the power of partnerships? Please join the conversation and share your successes and challenges with your peers as we delve into this important topic.
     
  • Discussing Overuse with Caregivers

    The ABIM Foundation has partnered with the Patient Centered Primary Care Collaborative to develop a webinar on Discussing Overuse with Caregivers. If you are interested in learning more or attending, please visit the link below.