• Family Presence and Partnership: Promising Practices in Hospital Settings During COVID-19

    When the COVID-19 pandemic threatened the welfare and safety of patients, health care providers and the community, hospitals suspended established family presence and visitation policies. The partnerships with patient and family advisors was challenged as well. This webinar highlights the ways that organizations committed to authentic partnerships have co-created solutions to address safety and facilitate family presence. Practical ideas, strategies and resources will be shared. This free webinar is supported by the New York State Health Foundation.

    Join us on Tuesday, September 15th at noon ET
  • PFCC.Connect Conversation August 10th!

    Join us for another PFCC.Connect Continuing Conversation on COVID-19:

    PFCC Partnerships: Addressing Isolation and Emotional Well-being during the Pandemic

    Monday, August 10th, noon ET/9amPT

  • Partial Scholarships Available for Tuition Assistance to International Conference

    Interested in attending IPFCC’s 9th International Conference on Patient- and Family-Centered Care: Partnerships for Quality, Safety, and Equity but not yet registered due to cost considerations?

    A generous donor has helped IPFCC create a Matching Conference Scholarship Fund which will cover 50% of the registration fee. That means that health care professionals can register for $250 and patient and family advisors/partners can register for $200!
  • Scholarships to IPFCC International Conference for NY state residents

    Through the generous support of the New York State Health Foundation, we have a limited number of scholarships to cover the tuition/registration costs for IPFCC's 9th International Conference on Patient- and Family-Centered Care.

    If you are a NY state resident and interested, please apply today!

  • Free Pre-Conference Webinar on Telehealth July 30th at noon

    Join us for a free webinar next week:

    Creating Your Telehealth Platform Hand in Hand with Patients: The Cambridge Health Alliance Story
  • Free Pre-Conferece Webinar: Conversation on the Opioid Epidemic July 21st 12-1pmET

    A Conversation About the Opioid Epidemic and
    Current Approaches to Address This Crisis

    We are excited to give you a preview of what to expect from the virtual Conference and are hosting a free pre-Conference webinar on July 21st.

     Hear from Sam Quinones, award winning journalist and author of Dreamland: The True Tale of America’s Opiate Epidemic, and Liz Crocker, lead author of Privileged Presence: Personal Stories of Connections in Health Care and author of Transforming Memories: Sharing Spontaneous Writing Using Loaded Words, as they engage in a conversation about the roots of the opiate epidemic, how it’s changed over time, where it stands now, what it’s calling on us to do, and its connections to both the coronavirus and Black Lives Matter movement.
  • PFCC Partnerships Across the Continuum during COVID-19: Where Are We Now? Thursday, July 16th, noon

    IPFCC has hosted numerous informal conversations on COVID-19 impact on patient- and family-centered care (PFCC). We want to take this conversation to a deeper level and need your assistance.


    Funded by a grant from the New York State Health Foundation, IPFCC will offer a series of free webinars and online conversations across the continuum of care focused on PFCC during COVID-19. 
    In this next conversation, we will step back and review where we’ve been and what lies ahead. We want to support an ongoing dialogue, networking, and learning related to PFCC and bring in voices from other care settings. The July 16th conversation hopes to bring together individuals across the care continuum to discuss what is most important at this time. We will use the time to identify key issues and prioritize them. Your participation will help inform webinars, future informal conversations, and potentially identify resource needs. What strengths do you see across the community? How have partnerships been enhanced or damaged during the time? How are individuals being impacted by COVID-19 policies and practices and where can partnerships address these concerns? What are the burning issues in primary care and ambulatory settings as well as in continuing care retirement communities (CCRC). Bring your best ideas and most perplexing issues so we can capture what is happening out on the front lines and in our communities. We invite you to bring others in your network so that we have a broad representation.

    These informal conversations are participatory in nature, building on the experience and strengths of those who join the call. We do not do a presentation but rather let the discussion be guided by what the participants want to learn more about through the sharing of our collective experiences. Come join the conversation to help us frame the conversation and development of resources and webinars as part of the ongoing project. Mary Minniti, Senior Policy and Program Specialist, will facilitate this discussion.

  • Opportunity for PFAs to Share Your Thoughts

    A colleague from Vizient, Kellie Goodson, is seeking patient and family voices to participate in an ongoing conversation (virtual) on reopening. Interested? Read more below:

    Vizient and Sg2 would like to continue to bring the voices of patients and families to its member health care organizations to help navigate the reopening of health care services such as elective surgeries and procedures during the COVID-19 pandemic. They welcome Patient and Family Advisors from across the U.S. to provide feedback via a pulse survey (short 12 questions survey that should only take 5 minutes to complete). They would like to get as much feedback as possible by July 7th, so please pass this survey along to any patient or family care giver in your network. Vizient will create a report and make it publically available to its members and to patients and families who complete the survey.
  • Culture and Inclusiveness Action Collaborative Free Webinar July 7th 1-4pm ET

    Culture and Inclusiveness
    Action Collaborative
    Free Webinar
    July 7, 2020 | 1:00pm - 4:00pm ET

    Join the National Academy of Medicine's Leadership Consortium for a free webinar on July 7, 2020 at 1pm ET that will explore opportunities to engage patients and families in care settings during the pandemic and system- and policy-level approaches to improve health and health care equity.

    Speakers will deliver short presentations and the webinar will conclude with Q&A with the audience. No continuing education credits will be issued for attending this webinar, and the webinar will be recorded and posted on the NAM's website after the webinar concludes.

    Webinar Agenda
    1:00 pm ET | Welcome, Introductions, and Meeting Overview

    Michael McGinnis, National Academy of Medicine
    Mary D. Naylor, University of Pennsylvania
    Bill Novelli, Georgetown University
    Sandra Hernandez, California Health Care Foundation
    1:15 pm | Patient and Family Engagement During COVID-19

    This session will explore opportunities to engage patients and families in care settings during the pandemic. The discussion will focus on identifying solutions to the continued and existing gaps on engagement that are especially critical to address at this time.

    Beverley Johnson, Institute for Patient and Family-Centered Care
    Knitasha Washington, ATW Health Solutions
    2:00 pm | System and Policy-Level Strategies to Address Health and Health care Equity

    Strategies to reduce disparities and improve equity have ranged from focusing on social determinants of health, to tailoring interventions to populations at risk for disparities, to implementing policies specifically designed to reduce disparate outcomes. In this session, presentations will explore system- and policy-level approaches to improve health and healthcare equity. The discussion will focus on short- and long-term opportunities to leverage the unique position of the Leadership Consortium, and the NAM more broadly, to scale and spread these approaches to systematically advance equity.

    Tekisha Everette, Health Equity Solutions
    Consuelo H. Wilkins, Vanderbilt University Medical Center
    Cara James, Grantmakers in Health
    3:15 pm ET | Q & A

    A brief opportunity for webinar participants to ask additional questions that were not covered in the previous presentations and discussions.

    3:45 pm ET | Reflections, Next Steps, and Closing Remarks

    A brief summary of the afternoon’s discussion will be provided, as well as final thanks to all invited speakers and participants.

    Sandra Hernandez, California Health Care Foundation
    Michael McGinnis, National Academy of Medicine
    4:00 pm | Adjourn
    Register to Attend

  • PFCC.Connect Conversation on Black Lives Matter in Health Care

    IPFCC is hosting a PFCC.Connect Conversation on June 30th, Tuesday at noon ET, we hope you will join us to discuss this important topic:
    Building and Expanding Authentic Partnerships for Transforming Healthcare: Addressing Health Disparities Because Black Lives Matter

    In the health care space, how can we ensure that the PFCC values of respect and dignity, affirmative information sharing, participation, and collaboration are not just words but characterize experiences of the Black community?

    We encourage you to bring your stories as well as examples of positive, impactful approaches used to change systems of care. Come join us to share your lessons learned and ideas for positive action to address health care disparities now and in the future.

  • Next COVID-10 Conversation June 9th noon ET

    Our next PFCC.Connect virtual informal conversation will be held next Tuesday, June 9, 2020 at 12:00 PM ET/9:00 AM PT, a continuing conversation on COVID-19: Connecting to the Community as Healthcare Services Begin to Resume.

    In the midst of COVID-19, hospitals are preparing to resume surgeries and other outpatient services; primary care is ramping up. Will our communities be ready? How is your organization inviting patients and families to come back in and re-establish care? Given that the pandemic has had a disproportionate negative impact on people of color, what ways are you reaching out to that population to ensure your organization is a trusted partner? Because of widespread unemployment, many more individuals/families are experiencing food and housing insecurity that may be prioritized over getting needed health care services. How have you partnered with your PFACs and community organizations to remove barriers to essential needs/services? How are the voices of patients and families who have experienced COVID-19’s impacts being integrated into Lessons Learned so far? Come join us to share what you have found most helpful, the strategies you have implemented as well as any challenges you face.
  • New Survey for Tracking Impact of COVID-19 on Family Presence and Role of PFACs

    Please take a moment to complete the survey.

    We invite all who are interested to complete the survey, particularly:

    • Hospital Administrators
    • Patient Care Unit Leaders (e.g., nurse manager, medical director, unit supervisor)
    • PFCC Coordinators/Directors
    • Patient/Family Advisory Council Members or other advisor roles

    IPFCC teamed up with UCSF Department of Family Health Care Nursing, School of Nursing and the University of Washington School of Nursing to develop a survey to gather information about changes to hospital and health system policies and practice due to COVID-19. The survey also explores how hospitals are engaging patient and family advisors in planning and implementing changes. Data (de-identified) from the survey will be reported on both IPFCC and PTBi websites so that results can be used by all to improve patient care as we continue our work to lessen the impact of COVID-19 on patients and families.

    Let’s all share and learn what’s happening in hospitals and work together with patients and families to promote partnership and best practices!

  • PFCC.Connect Conversation: PFCC and Pediatric Partnerships during COVID-19

    Join us on Tuesday, May 26th at noon ET for a special conversation. Funded by a grant from the Lucile Packard Foundation for Children's Health, Palo Alto, California, IPFCC will offer a series of free webinars and online conversations for children's hospitals and other pediatric settings focused on PFCC during COVID-19. In the first conversation in the series, we embark together to support dialogue, networking, and learning related to Pediatric Partnerships during COVID-19. The May 26th conversation hopes to bring together parent/family advisors and staff from children’s hospitals, and pediatric practices to discuss what is most important during the pandemic. We will use the time to identify key issues and prioritize them. Your participation will help inform webinars and future informal conversations and ,potentially, identify resource needs. What strengths do you see within the pediatric community? How have partnerships been enhanced or damaged during this time? How are children being impacted and where can partnerships address these concerns? Bring your best ideas and most perplexing issues so we can capture what is happening on the front lines and in our communities.

    The names and contact information of those who register for this conversation and other events in the series will be shared with the Lucile Packard Foundation.                                     

  • PFCC.Connect Conversation on Language 5-12 at Noon ET

    PFCC.Connect Continuing Conversation on COVID-19:

    Spotlight on Language and Messaging to Promote/Sustain Partnerships

    Tuesday, May 12th, noon ET/9amPT

  • PFAs - Join the Discussion on Elective Surgery Re-opening

    Are you a PFA? Want to get involved? Here is an Opportunity-

    Kelly Goodsen, a PFCC.Connect member is inviting you to consider joining this event. Participate in the audience and share your thoughts after the panel presentation....hope you can join:

    Connecting with Patients During COVID-19: A Panel Discussion
    Friday, May 1
    Noon ET, 11 am CT, 10 am MT, 9 am PT

    Vizient and Sg2 will host a panel discussion with patient and family advisors (PFAs) from its member hospitals and health systems on Friday, May 1. Nearly a dozen PFAs have agreed to join us to discuss the reopening of health care services such as elective surgeries and procedures. We also welcome any PFA from across the U.S. to join this discussion and participate in interactive polling questions and “chat” with us about this important topic.

    Register here:
  • Supporting Resiliency in Patients, Families, and Healthcare Staff

    Join Us on Tuesday, April 28th at Noon ET for a PFCC.Connect Conversation:

    In this third COVID-19 conversation, our topic will be RESILIENCY. As healthcare organizations and communities continue to maintain safety, and reduce the spread of this deadly virus, what impact have temporary policy changes and disruptions to our routines had on the people delivering care and those receiving care? What are you doing to take care of yourself, provide support to others, and be creative in nurturing strong partnerships? Come join us to share lessons learned, the tips and tools that strengthen our ability to maintain kindness and caring over the long term.

  • Continuing Conversation on COVID-19 - PFCC.Connect

    Join us Tuesday, April 14 at noon ET for a second conversation about the how best to keep our communities safe and reduce the spread of COVID-19 and invite the involvement of patients and families as members of the health care team. PFCC.Connect will be hosting a conversation to discuss and share what is happening out in the field.

    • What is your current approach to a caregiver’s role at the bedside?
    • How are you honoring patient wishes for family presence when their physical presence is not possible?
    • How are your PFAs staying connected to policy decisions and helping craft messages of respect and partnership to address this unprecedented time?
    Come join us to share how you have maintained safety, involved PFAs, and supported the emotional needs of patients, families and healthcare staff during this difficult time.

  • PFCC.Connect Conversation about COVID-19 3-31-2020

    PFCC.Connect will hold a conversation to support and learn from each other about PFCC approaches to preserve partnerships and connection during the COVID-19 pandemic.

    Register for the PFCC.Connect Informal Conversation on March 31 at noon ET:
  • PFCC Strategies in the Time of COVID-19 Webinar Added

    Due to strong demand, IPFCC will be holding a second webinar on Thursday, March 26, 2020 at 4pm ET:

    The capacity for participants is limited, so please register ASAP.
  • Suspicious Communication from Ellen Barney - Please delete without responding

    PFCC.Connect Learning Community:

    We became aware that someone going by the name Ellen Barney joined the listserv in the last two days and is asking individuals to contact her via a gmail account. The message and its the timing was very suspicious and some of you have contacted us. We have deactivated this account and will continue to monitor activity of this nature.

    Apparently, there is an upswing right now in suspicious communications like this globally. Thank you all for helping us keep PFCC.Connect a credible and collaborative resource.

    Take care and continue to stay connected while maintaining physical distancing during this unprecedented time. Be safe and well!
  • Call for Nominations: CMS Technical Expert Panels - Patient Family Opportunity

    Notice from CMS:
    "The Centers for Medicare & Medicaid Services (CMS) is developing quality measures for certain Medicare beneficiaries. As part of this project, Yale New Haven Health Services Corporation - Center for Outcomes Research and Evaluation (CORE) is currently convening two Technical Expert Panels (TEPs).

    We invite you to nominate individuals who might be interested in participating. The goal is to have broad representation on each panel to encompass the perspectives of healthcare providers, quality improvement professionals, performance measurement experts, purchasers, consumers, and patients. Please see below for an overview of the TEPs accepting nominations. You can nominate others or yourself.

    TEP Objective Beneficiary Population Panel Duration Deadline for Nominations
    Development of Days at Home Quality Measure Patients who are aged 18 years or older* with complex, chronic conditions Through September 2020 January 9, 2020
    5:00 pm ET
    Development of a Quality Measure Assessing Delay in Progression of Chronic Kidney Disease (CKD) Patients who are aged 18 years or older with CKD stages 4 and 5 Through September 2020 and potentially 2021 January 13, 2020
    5:00 pm ET

    Individuals and organizations should be aware that persons selected for the TEP represent themselves and not their organizations. Instructions for submitting a nomination packet, as well as work and TEP member responsibilities can be found on the link below".
  • New York Times Request re: Hospital Provided Childcare for Families

    IPFCC was contacted by Jancee Dunn, a reporter writing an article for the NY Times. She is working on an article regarding childcare support provided by hospitals to parents admitted with sudden illness or in emergencies.
    She is interested in talking with hospitals who provide this service or parents who have had this experience. Her article deadline is by December 30th.

    If you information on this topic, please contact her directly at

    Thank you!
  • Free Webinar for Patients and Caregivers Opportunity

    Patients and Caregivers: Learn how you can transform care in your community

  • Abstract Submission Deadline has been extended to December 11th!

    We have extended the submission deadline for abstract to our 9th International Conference in Nashville! Don't miss out!
  • Submit an Abstract for the IPFCC 9th International Conference

    It’s now official:IPFCC's  9th International Conference on Patient- and Family-Centered Care: Partnerships for Quality, Safety, and Equity in Nashville, TN is happening. With leadership support from Vanderbilt University Medical Center and partnership support from Beaumont Health, the conference will be held from August 18 to 20th, 2020.

    Our conferences are such exciting events and we look forward to seeing you there! 

    Given your passion for PFCC and authentic partnerships between health care organizations and patient and family advisors, please consider submitting an abstract about your work at is accepting submissions for both oral and poster presentations now.  December 4, 2019 is the abstract closing date.
    I have attached the Call for Abstracts brochure; you can also find more information on our website: Please feel free to share this information with your

  • PFAs - Another opportunity to provide virtual feedback...on electronic health records...

    You Do Not Need to Be an EPIC User to Participate (a type of electronic medical record) 

    An Opportunity to Shape the Future of Healthcare!

    Epic’s Patient Experience team builds software that millions of patients use to manage their health. Their team is always striving to make the software better and would love to hear from you!


    If you would like to be contacted about potential research studies or opportunities to give feedback on new features, please fill out this 5-10 minute online survey. Studies may be done remotely or on Epic’s campus in Madison, WI. If you’re able to come to Epic, they will provide you with a lunch and a tour of their campus!


    For questions, please email


  • Patient Family Advisor (PFA) Summit on Healthcare Measurement January 28, 2020 National Quality Foru

    PFA Scholarships are available!

    The PFA Summit on Healthcare Measurement will facilitate actionable dialogue between researchers, measure developers, policy organizations, clinical experts, patients and family caregivers. This co-design opportunity will focus on strengthening approaches to engage the patient and family perspective in developing and using healthcare measures. Bridging technical wisdom and lived experiences will ensure that we move toward measures that are more meaningful. You can expect to learn from progressive work being done currently, and to collaborate with experts around problem-solving existing barriers to engagement. Patient family advisors participate by application and national partners by invitation in the coming weeks.

    Meeting Objectives

    1. To increase the capacity of Patient Family Advisors to participate in all stages of measurement development.
    2. To increase the capacity of measurement professionals to meaningfully produce and report quality data to PFAnetwork Members as representatives of the broader consumer voice.
    3. To identify future opportunities for partnership to strengthen the all phases of measure development.
  • Seeking information about use of health information technology impacting patients and families

    Important changes will be happening in the field of health information technology in the near future that will have a direct impact on patients and families.


    IPFCC is interested to know if your hospital or health system has:

    • A PFAC (or PFAC subcommittee) focused on HIT (Health Information Technology)?
    • PFA Members on the HIT Committee?
    • A FHIR (Fast Healthcare Interoperability Resource) Implementation Committee or a PFAC focused on FHIR Implementation?
    • (FHIR is the software platform that will be used to solve the interoperability between electronic health records and create an application programming interface (API) between different electronic health records. APIs will also be used to create disease specific apps for patients and families.)
    • PFAs on the OpenNotes Implementation Team?
    • If there is no HIT PFAC or subcommittee, has the existing PFAC has done focused work on HIT issues in partnership with the health system?