Announcements

  • Join IPFCC for Our Next PFCC.Connect Convo - July 29th

    PFCC.Connect Conversation July 29th Noon ET:  Moving Toward Family Presence across Health Care Settings: Supporting the Front-line Workers

    Register today
  • Free Webinar - June 24th

    Patient and Family-Centered Care and Research Partnerships during COVID-19 Webinar

    June 24th ET, 12-1 pm via Zoom

    Learn how partnerships were strengthened during COVID-19 in the research arena.
  • Patient & Caregiver Input Opportunity

    Testing the What Matters to Me Workbook

    Dr. Erik Fromme, Ariadne Labs faculty, and Palliative Care Physician at Dana Farber Cancer Institute, is recruiting a diverse group of patients and caregivers to test their new What Matters to Me Workbook. (https://theconversationproject.org/new-workbook-what-matters-to-me/) They are looking for adults (18+) who are living with a serious illness and have a caregiver (family member, friend, health care proxy) interested in participating with them. If they do not have someone like that, but would be willing to try having a conversation with one of their health professionals (doctor, social worker, nurse, etc.), that is also acceptable.

    If you know of a patient who might be eligible and interested per the study criteria, please reach out to Nora at seriousillnesscare@ariadnelabs.org for more information.
  • Webinar April 15th: CARE_PATH for Kids

    CARE_PATH for Kids: A Family-Centered Approach to Shared Plans of Care for Children with Special Health Care Needs
    April 15, 2021, 11 am to 12 pm PST

    Learn more and register: https://www.lpfch.org/cshcn/join-us/events/carepath-kids-family-centered-approach-shared-plans-care-children-special
  • “Where Do We Go From Here?” Tuesday, April 6th, noon ET

    This is the 8th and final conversation in a series funded by a grant from the New York State Health Foundation. As you look back on living with COVID-19 for over a year, what insights have you gained? Were there high points in the year you wish to share and celebrate? It has been challenging and stressful for many of us. What have you or others done to strengthen individual and organizational resilience? What support and information in sustaining effective partnerships are still needed? How can we continue to learn together and support the core concepts of patient- and family-centered care?
     
    Join us to identify ways that the PFCC.Connect learning community can continue to advance PFCC now and post-pandemic. These informal conversations are participatory in nature, building on the experience and strengths of those who join the call. The discussion is guided by what participants want to learn more about and through sharing our collective experiences.
     
  • A COVID Year in Review: What We’ve Learned About Partnerships Across the Continuum Thursday, Mar 11,

    This last year has been unlike any other as the pandemic has taken its toll across the globe. Despite the challenges, many healthcare organizations have renewed their commitment to patient- and family-centered care. Join this webinar to review the power of partnerships and how patient and family advisors have stayed connected to help promote safety, quality and resiliency. Emerging best practices and new tools will be shared, including IPFCC’s resource, “Family Presence During A Pandemic: Guidance for Decision-Making.”

    This free webinar is made possible by the support of the New York State Health Foundation.

     

    Webinar Objectives:

    • Explore ways that organizations have strengthened partnerships with patient, resident, and family advisors (PFAs) in the midst of a pandemic;
    • Learn how PFAs have influenced policy, programs, and services to help address the challenges of COVID to improve safety and quality;
    • Review three new tools for “revisiting” recent restrictions on family presence in health care settings and learn how to use them with a collaborative decision-making team, including patient and family advisors;
    • Reflect on the partnership lessons learned in the last year and identify emerging best practices that move us forward together to ensure a safe, equitable, and bright future for all

     

  • Free Webinar on OpenNotes in Pediarics and With Adolescentss

    OpenNotes is hosting a free webinar on OpenNotes in Pediatrics and with Adolescents. The webinar is Feb. 18, 12-1pm EST. A companion office hours session, which is Q&A only, will take place on Feb. 23, 12-1pm EST. The expert presenters for these sessions are Dr. Fabienne Bourgeois from Boston Children's Hospital and Dr. Cynthia Kuelbs from Rady Children's Hospital.

    More information and registration can be found here: https://www.opennotes.org/news/open-notes-in-pediatrics-with-adolescents-research-real-world-experience/
  • Mark Your Calendars - Final Free COVID Webinar on Best Practices

    Webinar on March 11th noon ET: A COVID Year in Review: What We’ve Learned About Partnerships Across the Continuum
  • Upcoming PFCC.Connect Informal Conversation

    PFCC.Connect Conversation February 9th Noon ET: The Evolution of Patient and Family Advisory Councils During the Time of COVID
  • New COVID Webinar Recording- Behavioral Health Available

    Addressing Behavioral Health Needs in the Time of COVID: Building Partnerships and Resiliency (January 21, 2021)

  • PFCC.Connect Conversation on December 15th

    Join us for a PFCC.Connect Continuing Conversation on COVID-19: PFCC Partnerships: Continuing Care Communities – Best Practice for Supporting Elders to Thrive in the time of COVID


  • Webinar Recording on COVID and Long Term Care Now Available

    Learn how others have responded to COVID challenges in Long Term Care by accessing all the materials from the webinar.
  • PFCC Partnerships: Ambulatory Surgery Amid COVID – Best Practices for Safety and Care

    Join us on Tuesday, October 27th at noon ET for informal conversation.
  • Call for Nominations for NQF Committees - Due November 2, 2020

    National Quality Forum is soliciting nominations for their committees. NQF is also seeking patient and caregiver representatives to serve on the 13 different committees. The committee including patient experience, surgery, and patient safety to name a few. Individuals can self-nominate or nominate someone they know.

    They are looking for diversity and a commitment for a 2 year term.
  • Engagement in pandemic times: Partnering with patients and caregivers affected by COVID-19

    IPFCC is a partner to Johns Hopkins University on their PCORI Engagement Award titled “Engagement in pandemic times: Partnering with patients and caregivers affected by COVID-19 to advance patient-centered outcomes research." Johns Hopkins is looking to partner with people who had COVID-19 and who have an underlying medical condition (e.g., high blood pressure, diabetes, chronic lung disease), as well as their family caregivers. Interested participants will be invited to join 1-2 conversations, either online or by phone, to share their experiences and thoughts about COVID-19. An honorarium of $50 would be provided. If you would like to learn more information about participating in this study, please contact Jamia Saunders by phone at 410‐637‐4389 or by email at REPAIRCOVID19@jhu.edu.

  • Upcoming PFCC.Connect Informal Conversation 10-13 noon ET

    PFCC Partnerships: Focusing on Vulnerable Populations in the Pandemic: Challenges, Strengths, and Effective Strategies

    Tuesday, October 13th, noon ET/9amPT

    This is the third conversation in a series that is funded by a grant from the New York State Health Foundation. In this conversation, we will discuss and explore the ways vulnerable populations are being impacted by COVID and the ways that organizations and communities are working to address inequities. How are individuals and families from minority communities being engaged and providing feedback on their experience? With the ramp-up of virtual care via telehealth, how is the digital divide being addressed so that no one is left behind? As you have encountered challenges, how have you built on the strengths of your community and addressed these issues?

    What strategies have you implemented to increase trust among the hardest-to-reach patients and families? What hopeful stories of partnership might you share with the group?

    Please join us!

     

  • Pediatric Partnerships Informal Conversation 9-29 Noon ET

    PFCC and Pediatric Partnerships During COVID-19 – Finding Strength in Crisis

    Tuesday, September, noon ET/9amPT

    Join Us for the 5th Event in the Series: PFCC and Pediatric Partnerships During COVID-19

     

  • Family Presence and Partnership: Promising Practices in Hospital Settings During COVID-19

    When the COVID-19 pandemic threatened the welfare and safety of patients, health care providers and the community, hospitals suspended established family presence and visitation policies. The partnerships with patient and family advisors was challenged as well. This webinar highlights the ways that organizations committed to authentic partnerships have co-created solutions to address safety and facilitate family presence. Practical ideas, strategies and resources will be shared. This free webinar is supported by the New York State Health Foundation.

    Join us on Tuesday, September 15th at noon ET
  • PFCC.Connect Conversation August 10th!

    Join us for another PFCC.Connect Continuing Conversation on COVID-19:

    PFCC Partnerships: Addressing Isolation and Emotional Well-being during the Pandemic

    Monday, August 10th, noon ET/9amPT



  • Partial Scholarships Available for Tuition Assistance to International Conference

    Interested in attending IPFCC’s 9th International Conference on Patient- and Family-Centered Care: Partnerships for Quality, Safety, and Equity but not yet registered due to cost considerations?

    A generous donor has helped IPFCC create a Matching Conference Scholarship Fund which will cover 50% of the registration fee. That means that health care professionals can register for $250 and patient and family advisors/partners can register for $200!
  • Scholarships to IPFCC International Conference for NY state residents

    Through the generous support of the New York State Health Foundation, we have a limited number of scholarships to cover the tuition/registration costs for IPFCC's 9th International Conference on Patient- and Family-Centered Care.

    If you are a NY state resident and interested, please apply today!