• IPFCC is Hiring a Database Manager

    Please share this unique opportunity with your network. IPFCC is looking for someone to join our team!
  • Ontario Health Team (Canada) Seeking Patient, Family, Community Participation in Healthcare Redesign

    Do you live within the  Markham, Stouffville, Brock, Uxbridge and Thornhill regions of Ontario, Canada? Please consider participating in imaging how to improve healthcare services where you live. Share your experience and ideas. View the flyer in the library and RSVP by August 9th by contacting Sharon Kenny at or (905) 472-7373 ext. 7091.
  • August Informal Conversation + Updates

    Most of our previous informal conversation recordings have been posted in the All Members Library under "Previous Conversation Recordings." I have also added a shortcut on the homepage, for your convenience.

    For those who registered to receive the recordings by email, I apologize for the delay. I will try and send all of those out to you by the end of this month/beginning of next month.

    Registration is now open for our August conversation on Measurement - Tracking Patient and Family Engagement Activity and Outcomes. You can register for it here. It is also posted on the Events calendar.
  • Upcoming PFCC.Connect Conversations - Watch for Registration Links in your email.

    Mark your calendars now for 2 upcoming PFCC.Connect Informal Conversations:

    • July 18 1pmET/10amPT  Topic: Behavioral Health - Engaging Patients and Families
    There is a growing interest in addressing mental health, substance use disorder and other behavioral health challenges across the continuum. Innovative partnership models are being explored and are showing some promising results. There is a growing recognition that inviting, supporting, and encouraging participation of those with a lived experience is an important aspect of these efforts. How have you engaged individuals and their families in these efforts? What creative solutions are being explored in your organization, community or region? When have patients and families added a unique perspective and helped build coalitions and solutions? How have direct care strategies helped strengthen engagement of those receiving care? Come join a conversation that will explore these issues and uncover the best practices that you and your colleagues/partners have discovered. 
    • August 1 2pmET/11amPT  Topic:  Measurement: Tracking Patient and Family Engagement Activities and Outcomes
    Many organizations have engaged patients and families in direct care and as improvement partners. To build an evidence base for these partnerships and the advancement of PFCC, developing a measurement strategy is essential. What has your organization found to be most useful? How has your PFAC and PFAs contributed or been involved in measuring change and improvement? Do you use Annual Reports to document results? When and where are results shared and with whom? Are there topics or areas that you have found challenging to measure? What advice might you give an organization just starting out in this journey about the significance and impact of documenting the power of partnerships? Please join the conversation and share your successes and challenges with your peers as we delve into this important topic.
  • Discussing Overuse with Caregivers

    The ABIM Foundation has partnered with the Patient Centered Primary Care Collaborative to develop a webinar on Discussing Overuse with Caregivers. If you are interested in learning more or attending, please visit the link below.
  • Complimentary Patient & Caregiver Registration at #NQF19

    Message from the National Quality Forum:

    "Since our founding, NQF uniquely champions the importance of patients and caregiver voices to promote a level playing field for all stakeholders to improve healthcare quality. Actively engaging patients and caregivers is central to NQF’s mission and our member organizations - #NQF19 will not disappoint!
    Complimentary Patient & Caregiver Registration - Patient Experience at the Forefront of Quality

    As part of the 20th Anniversary celebrations, NQF is pleased to announce an inaugural complimentary patient & caregiver registration to the NQF Annual Conference.
    Thanks to the generous support of Bristol-Myers Squibb and Well-Care, NQF is able to offer a block of free registrations and lodging to individual patients and caregivers whose lived experiences ground NQF’s work and remind us of the purpose of our collective efforts – to improve care and outcomes for all people."

    Learn more about the conference in the link posted in our Upcoming Events.
  • Parent Mentor Learning Collaborative Seeking Participant

    Lucile Packard Foundation for Children's Health has funded a grant to expand the work of the California Parent Mentor Learning Collaborative to children's hospitals outside of California. The grant is intended to assist children's hospitals to develop or enhance the role of the Parent Mentor working directly with health care teams in inpatient and clinic settings. Participants will attend co-learning meetings; be able to access Parent Mentor program materials and have Packard staff visit their site. There is no direct budget cost to the participant. There are 6 slots available. If you are interested please contact Karen Wayman at
  • Orme Partnership Achievement Award

    The Orme Partnership Achievement Award recognizes Patient Family Advisor and Healthcare Professional teams that are making improvements across care by mobilizing the partnership to create positive and sustainable change in your organization.  Do you have a project or program that really represents the power of partnering with healthcare organizations?  Maybe your PFAC started a rounding program this year, or maybe you are serving as a patient stakeholder on a research project that has really progressed the thinking of researchers and patient partners?  We want to celebrate your progress!  Please consider nominating a team, self nominations accepted.  

    Achievement Criteria:  Within the last 3 years
    1. Nominees should demonstrate active partnership in co-design of improvement efforts in healthcare.  
    2. Nominees may represent hospitals, community based healthcare organizations and/or policy and research efforts.  
    3. Nominees should be reflective of an established relationship, formal or informal, based in authentic collaboration and mutual respect, with the goal of improving healthcare for patients and families served at the organization.  

    Teams meeting the criteria will be recognized at the PFCC Annual Conference on February 4 in Los Angeles. 

    More information on the PFCC Annual Conference can be found here
  • PCPCC Conference Scholarships Available for Patient Family Advisors/Advocates

    You may be eligible for a scholarship! Read more about it:L

    Dear TCPi Colleagues,


    Are You Committed to Improving the Future of Primary Care?


    We are inviting you to the Patient-Centered Primary Care Collaborative (PCPCC) Annual Conference, Key Policies to Elevate Primary Care on November 8, 2018, in Washington, DC.


    Featured by innovation and policy leaders, this premier event will allow you to explore key strategies to elevate primary care through educational sessions and in-depth discussions on how we can make our vision for primary care—one that is person-centered, team-based, and community-aligned—a reality.

     Attendees will learn ways to spread and scale our vision of primary care through evidence-based policies, benefit design changes, and patient-family engagement efforts.

    ***We are also offering conference registration scholarships to select TCPI participants to join us in Washington, DC. Learn more about the scholarships, who is eligible, and the way to apply.

    Date: Thursday, November 8, 2018 - November 

    Location: Capital Hilton; 1001 16th Street, NW, Washington, DC 20036 


  • Welcome!

    The Canadian Patient Engagement Network is a community for anyone passionate about patient engagement or patient-centred care with a focus on patient safety. This is a place to share, learn, help and get help in real time. We aim to build individual and system capacity, reducing duplication of efforts, and increasing collaboration. Safe healthcare for all Canadians requires everyone's involvement.

    Look forward to a great experience together!
  • Exclusive Conversation for our PFCC.Connect Members!

    Do you have a peer support program that engages patients and families to support their needs? Have you received peer support for a health condition?
    We are hosting an informal conversation to explore this important topic exclusively for our PFCC.Connect members! Join the conversation, learn from others and help expand our collective view of the critical role peer support can play in healing and in helping individuals in being the most important member of their health care team!  The conversation will be moderated by Mary Minniti, IPFCC Senior Policy and Program Specialist. She will be joined by Deborah Dokken, IPFCC Coordinator for Patient and Family Partnerships.